Pre Eclampsia support

For Women & their families who have suffered with Pre Eclampsia, Eclampsia, HELLP syndrome, Pregnancy induced hypertension (PIH) and related conditions.
 
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 APEC Consultant - Midlands

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LyndaB
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Join date : 2008-09-02

PostSubject: APEC Consultant - Midlands   Thu 11 Sep 2008, 5:16 pm

Hi, I suffered from PE in December last year (diagnosed Christmas Eve, hospitalised on 27 Dec and delivered on 9 Jan), luckily my little boy was delivered perfectly ok at 36+3 - if a bit small - but it took me 8 months for my system to clear. Anyway I've been told I'll need constant monitoring during any subsequent pregnancy by a renal specialist amongst others but before I made any rash decisions I wanted to know exactly what I could be getting myself in for if I do decide to go again. So Liz, if you would be kind enough to forward me a list of APEC consultants I'd appreciate it. I'll get around to introducing myself properly and telling my story at some stage.

Thanks
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Liz Pidgley
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Join date : 2008-04-23

PostSubject: Re: APEC Consultant - Midlands   Thu 11 Sep 2008, 7:34 pm

Hi Lynda,

I will email you the whole list!
I would suggest that as well as choosing an expert you consider the travel that might be involved.
If the consultant wishes to see you when you are 38 weeks pregnant you wont want to be travelling miles neither do you want to be a long way from home if you are poorly & need a stay in hospital.

Your GP will need to make a referral although some will accept a self referral.
Let me know if I can help or if you need support to get a referral.
Best wishes
Liz

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Every Woman is entitled to understand what happened in her pregnancy when pre eclampsia strikes. I hope to be able to support that process.
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LyndaB
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PostSubject: Re: APEC Consultant - Midlands   Fri 12 Sep 2008, 9:14 am

Thanks for the list Liz. At the moment I'm just starting to think about another one but my husband is dead set against it. He doesnt want to see me go through PE again. To tell the truth I was really lucky as I was being monitored for placenta previa when they picked up on the PE. But the Head Consultant of the maternity hospital I attended (one of the Gopec Researchers) had actually given me a warning about it at my 15 week scan. Having said that I still missed a few flipping obvious signs a couple of weeks before it was diagnosed (epigastric pain, swelling) - could have kicked myself for that. I think its the same for everyone - I'm just really worried what could happen next time.
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Liz Pidgley
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PostSubject: Re: APEC Consultant - Midlands   Mon 15 Sep 2008, 5:44 pm

Hi Lynda,

I can appreciate both points of view.
Your want for another child is as understandable as your husbands fears of going through PE again and having to watch the woman he loves going through a fight for her life and that of their child.

It sounds as though you are making all the right decisions in getting an expert opinion on the possibility of reoccurance that is precisely for you and from someone qualified to give that opinion. When you get your appointment do take notes for you to ask and for the answers. Ask how your care would be planned should you decide on another pregnancy. Rule out underlying complications such as 'sticky blood' syndromes. how often will you be seen and by whom? What scans will you have - do they include a doppler scan? Do you need heparin or aspirin?....

Only when you feel you have all the information you need will you and your hubby feel more able to make a decision about whether you want to go through it again. Obviously you will be anxious from the moment you find a positive pregnancy test right up until your baby is safely in your arms where s/he should be. There may be wobbles along the way in terms of approaching the gestation of its appearance last time around or if your BP wobbles, but we will be here to support you when that happens.
As more often than not, it is the emotional scars of PE that take longest to heal. I am confident that many of us here will lay testimony to that, but please be reassured that we are with you when you want us and the knowledge that IF pre eclampsia reoccurs it is more likely to be less severe and upto 2 weeks later.

I hope this helps but do please let me know if I have missed something you would like to know!
Warmest Wishes
Liz

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