Pre Eclampsia support

For Women & their families who have suffered with Pre Eclampsia, Eclampsia, HELLP syndrome, Pregnancy induced hypertension (PIH) and related conditions.
 
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 Severe pre eclampsia and loss of baby

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shelley74shelley
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Join date : 2011-06-23

PostSubject: Severe pre eclampsia and loss of baby   Sun 26 Jun 2011, 6:09 pm

Hi i have been lurking around here for a month or so, after being told about the site. A lovely lady called Carole i know from another baby forum has been kindly posting my details on here for advice from Liz, whist i have been poorly in hospital. I thought it would be nice to say thank you and tell my story.

It all started about 6 weeks ago when i was 18 weeks pregnant. I started getting swelling of the ankles. I presumed this was normal as i have never been pregnant b4, but my wise old nanna told me to get checked out as i shouldnt be swelling so early. I left it a couple of days but developed a constant 2 day headache which wouldnt go away, so i rang the out of hours doctor. I had trace protein and raised bp. I was admitted to hospital.

They were absolutley adamant it was not pre e as i was under 20 weeks. I had every test under the sun which all came back normal. Nothing to explain my symptoms. Again, after nearly 2 weeks in hospital, they said it most def was not pre e just unexplained high blood pressure, so discharged me with medication.

A midwife came round every day to check my bp and urine for protein. Straight away i was getting more and more protein, +1 then +2 etc. Again i was admitted at 20 weeks. Swelling was now in my hands, back, legs, face and every day i was waking up looking more and more like the elephant man. Unrecognisable. After daily bloods which showed everything to 'appear' ok, i was told they would just monitor me daily, to see how long the pregnancy would last. Due to several errors on their part, too many to even mention right now, (which we are taking up with PALs) we fought to be transferred to Sheffield hospital as they specialise in maternity and special care for prem babies. We had to try anything and everything for our baby.

Straight away i was put in high dependancy unit and monitored every 15 minutes as my case was that severe. Unfortunately all the consultants and specialist said it was the most severe and rare case of pre e they had ever seen. Within 2 days my protein was off the scale, my bp was rising even on meds and became uncontrollable. I had to be put straight on drips etc to prevent fitting strokes and any other evil pre e symptoms. They think at this point my baby boy passed away inside me as they scanned and the poor darling wasnt moving. Heartbroken doesnt describe it. It feels like your insides are being ripped to shreds and pulled out. It is all so raw and surreal so we are only just coming to terms with it. He was born at 22+5 weeks. Beautiful.

I believe if we hadnt of fought to be transferred to Sheffield i could have died. My bp hit 210/160 in the first hospital. They continued to monitor me every 4/6 hours. Leaving me in a room on my own. While at sheffield once my bp got to 170/110 i was wired up to drips and monitored constantly. I didnt realise how serious i was until a midwife came and sat with me and explained why they were so worried for me. I never knew anything about pre e. It is scary and i have so many questions about the future. xxx

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*Carole*
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Join date : 2009-10-27

PostSubject: Re: Severe pre eclampsia and loss of baby   Sun 26 Jun 2011, 6:54 pm

welcome shelley, I'm sorry you had to find us. it's heart breaking reading your story.
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Mossy
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Join date : 2009-03-24

PostSubject: Re: Severe pre eclampsia and loss of baby   Mon 27 Jun 2011, 7:05 am

I'm glad you found your way here. Thank you for sharing your story- it is so sad. There is a lot of knowledge here so when you are ready ask away.
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Robby
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Join date : 2011-06-06

PostSubject: Re: Severe pre eclampsia and loss of baby   Mon 27 Jun 2011, 1:41 pm

Hello,

I am so sorry for what happened. It is so horrible, I have lost my little Rosie at 25+6, due to HELLP and Pre e. It is so scary, I hope you find all support you need here. Be gentle with yourself.

Thinking of you.
Robby
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Bea's Mummy
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Posts : 164
Join date : 2009-12-14
Age : 35

PostSubject: Re: Severe pre eclampsia and loss of baby   Wed 29 Jun 2011, 10:22 am

Hi there,
Welcome to the forum. I am so so sorry to hear about your baby...my thoughts are with you. xx
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jules
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Posts : 183
Join date : 2009-05-30

PostSubject: Re: Severe pre eclampsia and loss of baby   Wed 29 Jun 2011, 4:47 pm

I am so sorry you had to join us here. Bits of your story are very similar to mine. I'm so glad you came through it yourself but know how hard it is to lose the baby like this. I am thinking of you and hope that we can help you xx
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emmie
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Posts : 169
Join date : 2009-12-03
Age : 34
Location : Teesside

PostSubject: Re: Severe pre eclampsia and loss of baby   Wed 29 Jun 2011, 9:37 pm

I am so sorry to read your story. Unfortunately I can relate to quite a lot of what you said. Take care and there are lots of us here who sadly have had to cope with the loss of a child to this terrible disease. Take care and here if you need to chat.

Emma x
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Liz Pidgley
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Join date : 2008-04-23

PostSubject: Re: Severe pre eclampsia and loss of baby   Wed 20 Jul 2011, 10:41 am

Hi Shelley,

We have 'spoken' in other parts of the community, but I just wanted to welcome you here too.

Thank you for having the courage to come back and post here.

I can understand the dilemma of not being able to diagnose PE until 20 weeks, technically that is so - but as we know from bitter experience, pregnancy is not an exact science and in reality, the symptoms of PE can occur before hand although it is rare.

I am glad you fought to be transferred to another hospital. So many times after PE strikes we hear 'if only' or 'I wish I had...' You did stick to your guns and it gave your son the best possible chance to stay and although the outcome clearly is not what you hoped for I hope you will find comfort in the knowledge that you put up the best fight possible for Charlie.

As a mother, that is all we can ever ask of ourselves.

I hope you will find the forum the source of comfort & information you need. If what is already here is not quite what you are looking for, do ask.
Everyone here understands the devastation PE leaves behind.

Warm wishes
Liz

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Every Woman is entitled to understand what happened in her pregnancy when pre eclampsia strikes. I hope to be able to support that process.
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