Pre Eclampsia support

For Women & their families who have suffered with Pre Eclampsia, Eclampsia, HELLP syndrome, Pregnancy induced hypertension (PIH) and related conditions.
 
HomeHome  FAQFAQ  SearchSearch  MemberlistMemberlist  UsergroupsUsergroups  RegisterRegister  Log inLog in  

Share | 
 

 Need to explain

View previous topic View next topic Go down 
AuthorMessage
Liz Pidgley
Admin
avatar

Posts : 702
Join date : 2008-04-23

PostSubject: Need to explain   Thu 05 Jun 2008, 10:42 am

Hi all,

Im really sorry but Im going to get on my soap box a bit here.

Its about the other site....Ive just read the new CEOs post about 'problems' and am livid.

I wanted you all to know that when I was made redundant she did not even have the courtesy to at least phone me - I was told of my prospect by email.
Even after the event - not one person from the organbisation phoned me to say how are you, have you any questions etc....

Despite just how devasted I was at the news of losing my job, I was even more worried that you would all be left without support.

Because of that I offered to stay on as a volunteer (as I have volunteered for the organisation for over 10 years) and run the site. I was told quite clearly 'No' before being locked out of the forum altogether.

I watched the forum for a couple of weeks and noticed that new members accounts were not being activated and your questions were not being replied to.

I tried asking again but felt she wanted me to have nothing to do with the organisation any more.
To be honest, this makes me question 'why'? And that is an answer only she knows for sure.

All I can say to you - is that my intentions were always honourable and I have never done - nor would do - anything to bring the integrity of any organisation (especially a cause I am so passionate about) into disrepute.

I suppose I just wanted to say, Im sorry for the way we were all treated. But that is also why I set up this site - so that the support is available from some where & from someone who cares enough about the effects of this condition because I have 'been there' too.

Sorry if it sounds like 'sour grapes', but I do hope you will understand.
Thanks for all your good wishes.

Liz

_________________
Every Woman is entitled to understand what happened in her pregnancy when pre eclampsia strikes. I hope to be able to support that process.
Back to top Go down
View user profile http://www.preeclampsiasupport.com
Nicki D
Forum Friend
avatar

Posts : 94
Join date : 2008-05-25
Location : Gloucestershire

PostSubject: Re: Need to explain   Thu 05 Jun 2008, 7:04 pm

Liz,

I cannot believe how appallingly you've been treated - totally without an ounce of common decency towards you as a dedicated, caring individual, or any thought for the welfare of the community of users.

I have to say when I read 'the other post', I felt that it was trite and patronising, and was totally focussed on the writers needs and wants, not on the needs of the community that the forum was set up to support.

I was so glad when you set up this forum, I truly know that you care about each and every one of us, and I feel loved.

Thank you for being you

Nicki
Back to top Go down
View user profile
Penny
Forum Friend
avatar

Posts : 51
Join date : 2008-05-26
Age : 39
Location : Northamptonshire

PostSubject: Re: Need to explain   Thu 05 Jun 2008, 7:40 pm

Well Said Nicki !!!!! cheers

Cant even begin to explain my feelings as well as Nicki did but ditto everything she says.

I am so pleased you have set this site up and i think the amount of posts already speak for themselves how much support you have.

I dont blame you at all for feeling the way you do and i think you have been treated appallingly and have done a great job of holding your head high as you should.

here's to you Liz, your dedication is phenomenal (sp?)

Love Penny xx
Back to top Go down
View user profile
Lacey
Forum Friend


Posts : 10
Join date : 2008-05-25

PostSubject: Re: Need to explain   Thu 05 Jun 2008, 7:47 pm

Hi Liz,

I read that post on the other forum late last night and posted to say thank you for offering explanations. It was outrageous that nobody was looking after that forum or answering questions, afterall, whatever politics affect a charity they have to remember that they are there to serve a need within the community.

Now knowing that you offered to volunteer your very committed services and they refused your offer is disgusting.

The fact you were told by email, after everything you have done - paid or not - is unforgivable.

I'm so glad you have set up this forum. Even though we still haven't made the decision to try for another baby, this forum and your support will be and is a factor in that process. Words can't really express just how much this support means to me and I'm sure many others.

I'm beginning to regret posting my reply on that forum but I wanted to say to them that neglecting the forum was not acceptable under any circumstances.

Sorry if my reply has caused you any worries Liz, I will always back you and the support you give. You truly are the voice for so many people who have suffered this appalling condition.

Best wishes

Lacey x
Back to top Go down
View user profile
ingrid
Forum Friend
avatar

Posts : 146
Join date : 2008-05-25
Location : runcorn cheshire

PostSubject: Re: Need to explain   Thu 05 Jun 2008, 8:04 pm

Hi Liz

Rant all you want I think it is appalling the way they treated you and us the community Evil or Very Mad

Because of your dedication and understanding of PE you have set up this forum cheers I would like to thank you very much.

Ingridx

Grandmother to Briannah born asleep 2006 due to severe PE
Grandson due 26th June
Back to top Go down
View user profile
clearmoonlight13
Forum Friend
avatar

Posts : 21
Join date : 2008-05-26

PostSubject: Re: Need to explain   Fri 06 Jun 2008, 2:46 pm

Dear Liz
I too am shocked at the way you have been treated! I have noticed and even posted about the lack of response for queries placed on the other forum. It just seemed to me that there was no one moderating it or trying to help - which is the idea of the forum.
Then, I received your email annoucing this new forum. I have to say, once I joined this community I stopped visiting the other one.
Ever since I recovered from HELLP, I have felt this need to share my experience and help people that are going through similar. However, the last forum, since all the changes, is no longer a place I feel confortable with.
Unfortunately this is what happens when other issues become more important... the people that have been so fundamental before are pushed to the side, bad decisions are made in order to allow for more fundings... I have seen it before.
The fact that you started this new forum already shows your intentions of helping, and I don't think any of us that joined here need you to state them - I am so grateful for all the help and advice you offered in the past!!
I know you must feel very hurt with the way things went, but don't let that stop your determination, since you are right in thinking and doing as you do - and the proof is in this brilliant community that is forming here.
Well done, thank you for being there always
xxx
Back to top Go down
View user profile
emma29
Forum Friend
avatar

Posts : 25
Join date : 2008-05-24

PostSubject: Re: Need to explain   Fri 06 Jun 2008, 8:33 pm

Hi Liz

Just wanted to say how disgusted i am by the way you have been treated its really terrible after all the hard work and support you have given.

I just want to say thank you for setting up this forum its really good to know you are there for trusted advice and support. Its helped me greatly as sometimes its difficult to get answers but you always there and i've not doubt when we hopefully get pregnant in the future you will be there again xxx
Back to top Go down
View user profile
HelenA
Forum Friend
avatar

Posts : 36
Join date : 2008-05-25

PostSubject: Re: Need to explain   Sat 07 Jun 2008, 11:07 am

I agree wholeheartedly with what the others have said. It seems that the name the new CEO, who treated Liz so badly, has chosen for herself is very apt-bodicea, whom I believe rode roughshod over everyone!!!!
Back to top Go down
View user profile
purplestunner
Forum Friend
avatar

Posts : 19
Join date : 2008-06-02
Age : 34
Location : Bedfordshire, UK

PostSubject: Re: Need to explain   Sun 08 Jun 2008, 9:55 pm

Hear Hear I agree!!!! cheers

Liz, you're a star!! lol!

Its just a shame that some silly person (i'll name no names) can't see it and won't see it.

We're all here for you too you know!!

Emma xx
Back to top Go down
View user profile
Fran1
New User


Posts : 4
Join date : 2008-06-03

PostSubject: Re: Need to explain   Fri 13 Jun 2008, 9:55 am

Hi Liz

I am very grateful that you have set up this site. Through the other forum I received a lot of support during my second pregnancy and it is nice to know that this same support will now be available here for other people in a similar situation in the future.

I've noticed that the post that Ingrid put up on the other forum with a link to this one has been deleted. It's a shame because now it will not be easy for new people to find this forum.

Thanks again.

Fran1
Back to top Go down
View user profile
Liz Pidgley
Admin
avatar

Posts : 702
Join date : 2008-04-23

PostSubject: Re: Need to explain   Fri 13 Jun 2008, 11:16 am

Hi every one,

Thank you all for your replies and for such supportive messages.

I am currently looking into setting up a proper website to make this one 'Google-able' and therefore easy to find.
I too had noticed the link from the other site removed.

I have to say I was extremely disappointed at how the other organisation had treated everyone in the community and I told them so.

But here we are and life has to evolve. Maybe together we can add some fabulous new threads to this forum - I already have a few ideas & am waiting on some replies....so do keep popping in!

Once again, from the bottom of my heart, Thank you for your support.

Warmest Wishes
Liz

_________________
Every Woman is entitled to understand what happened in her pregnancy when pre eclampsia strikes. I hope to be able to support that process.
Back to top Go down
View user profile http://www.preeclampsiasupport.com
mouse
Forum Friend
avatar

Posts : 110
Join date : 2008-05-31
Location : West London

PostSubject: Re: Need to explain   Mon 16 Jun 2008, 9:06 pm

Big thank you Liz for setting up this forum & for standing up to those in the previous organisation. I can't believe how badly you were treated after so many years of help & support - I'm glad so many people have come over here.
I think it's amazing that you're giving this level of support as a volunteer & wanted to suggest setting up "charter membership" - I've seen it on other forums & it's where people can make a (suggested) donation to help with admin costs & cover some of your time. I would be happy to be the first one to sign up!
I will also try to think of fundraising ideas & may try to send my dad on another marathon..
Very Happy
Lots of love
Mouse xx
Back to top Go down
View user profile
Sponsored content




PostSubject: Re: Need to explain   

Back to top Go down
 
Need to explain
View previous topic View next topic Back to top 
Page 1 of 1
 Similar topics
-
» Pls explain- National Budget Circular 517 dated dec 22, 2008.
» can you all explain this to me if u can
» Crossing the Miqat without putting on Ihram
» How to Grow A Lotus Blossom?
» A rather personal story and correction dream God gave me

Permissions in this forum:You cannot reply to topics in this forum
Pre Eclampsia support :: Support :: I need to rant!-
Jump to: