Pre Eclampsia support

For Women & their families who have suffered with Pre Eclampsia, Eclampsia, HELLP syndrome, Pregnancy induced hypertension (PIH) and related conditions.
 
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 Wooohooo!!!!

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Liz Pidgley
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PostSubject: Wooohooo!!!!   Tue 11 May 2010, 3:44 pm

Ladies, we have been accepted by NICE (National Institute for Clinical Excellence) to be part of the stakeholder group.

I applied ...ages ago... for the members of this forum to have a voice in the guidelines process. Who better to say how PE feels than those who have experienced it?
This means our opinions will be sought after and heard when reviewing any guidelines to do with hypertensive pregnancy!

New draft guidelines are soon to be published too!
NICE guidelines

How empowering can we be I wonder!

Congratulations ladies, our hurdles & triumphs can at least help others who may be in our 'boats' or possibly even prevent a tragedy.
Im so excited...can you tell?!

Kindest wishes
Liz

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Every Woman is entitled to understand what happened in her pregnancy when pre eclampsia strikes. I hope to be able to support that process.
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nicki
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PostSubject: Re: Wooohooo!!!!   Wed 12 May 2010, 7:31 pm

Well done Liz- that sounds really positive. While I'm on the topic of guidelines my midwife said guidelines had changed in the last few years - since I had my first child in Aug '07. Is this true?
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Liz Pidgley
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PostSubject: Re: Wooohooo!!!!   Wed 12 May 2010, 8:43 pm

Hi Nicki,
I suspect she is talking about the updated PRECOG guidelines or the DAU guidelines.
They are all on here so you can still keep checking the care you are being offered is following them!
Best Wishes
Liz

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jules
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PostSubject: Re: Wooohooo!!!!   Thu 13 May 2010, 7:39 am

Well done Liz!

I hold quite strong opinions about how care is managed for apparently low risk women, which I would be quite happy to contribute at some point (I'll try not to be too strident).

Best wishes
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ingrid
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PostSubject: Re: Wooohooo!!!!   Thu 13 May 2010, 8:14 pm

This is fantastic news Liz, its good to have a voice and for people to listen power to the people.

I always feel Im on a mission and making sure friends and family are aware of Pre Eclampsia and what to look for its amazing even today there are still some that do not know what the symptons are or what to look out for.

exciting times ahead xx
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emmie
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PostSubject: Re: Wooohooo!!!!   Fri 14 May 2010, 4:40 pm

Fantastic Liz!!

So much more does need to be done about this disease and it's fantastic that people who know what it's like first hand get to have a say in that.

Well done.
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Bea's Mummy
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PostSubject: Re: Wooohooo!!!!   Sun 16 May 2010, 9:27 am

Great news Liz!
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ClaireS
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PostSubject: Re: Wooohooo!!!!   Wed 19 May 2010, 8:41 pm

Great news - a big well done Liz!

Claire x
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Bell
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PostSubject: Re: Wooohooo!!!!   Sat 22 May 2010, 7:12 pm

Thats great news. Well done Liz.
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